So once again at the crack of dawn on Wednesday, we will be heading over to the Children's Hospital for another jammed pack surgery morning for Lily. Just last November, she had her first multiple speciality surgery and did very well (Lily's Everything But The Kitchen Sink Surgery - Part 1). Even so, I dread putting Lily through another surgery, but we have little choice so as to keep her health optimal in addition to doing any maintenance procedures she can no longer handle awake due to her extreme anxiety with anything involving a doctor, nurse or a hospital. This will be her 11th surgery. :(
Her ENT will be placing ear tubes in her ear canals since she's had multiple double ear infections since her previous tubes fell out last year. Her last known ear infection was in January which triggered the horrible allergic reaction called Stephen Johnson syndrome to the antibiotic Omnicef. Thankfully, we caught it early enough to treat with steroids. They are also going to perform a sedated hearing test on her. I don't really see a hearing issue except for maybe selective hearing, but decided it wouldn't hurt to confirm.
Next, her orthopedic surgeon will be removing the steel plate from her hip at this time too. We removed the pins over a year and a half ago, but left the plate. We recently went to her orthopedic surgeon for a 6 month check-up and he mentioned it would need to come out at some point. Lily is a very strong candidate for hip replacement surgery in the future (her 40's) and it can make things very difficult if a steel plate is in there for so long to do the surgery. We mentioned to him she had an upcoming surgery with the ENT and so we all agreed to have him piggyback that surgery. The orthopedic surgeon has assured us she should not have any issues with the removal of the plate and should be up walking immediately. He said the plate is not holding her hip in place and her hip socket and femur are completely healed so she shouldn't have any problems whatsoever. I pray he's right. We are nervous about the whole thing, but I'm glad the hardware is coming out. I'm also hoping they will be able to determine the exact leg length differences she has due to her hip surgery causing her right leg to be substantially shorter than her left leg. Here's an X-ray from 2 years ago showing her plate and pins. The pins were previously removed in Oct. '12.
We will also be having blood work done. We are having the Down syndrome blood tests which include thyroid levels and a CBC. We are also having her genetically tested for our newest diagnosis in the family of Ehler's Danlos.
Finally she will be having foot molds made of her feet so we can get orthotics made to wear in her shoes. Her feet are turning to mush due to her low muscle tone and stretchy/lax ligaments and tendons. Not a good thing in the foreseeable future if we want her to be able to walk as she ages.
I'm asking everyone for prayers and good thoughts for a smooth surgery, for Lily to especially have no issues with her hip and for her to wake up calmly from anesthesia. We've had a few crazy rage filled wake-ups over the years, but thankfully they have gotten pretty good at controlling her reaction with a little Morphine in her IV. Praise God!!