And this too shall pass.

I'm sure you'd all love an update on my sweet angel, Lily.  It's been an incredibly draining day, but we have good news and not so good news.  First off, I want to thank everyone for praying and thinking of Lily.  It means everything to me. 

So, we arrived at the hospital this morning with Lily oblivious as to what was to about happen to her.  When it was time for her to go to her surgery, they pushed her on a gurney with her iPad tuned to Barney all happy and excited watching the nurse blow bubbles for her.  I, on the other hand, was a mess.  It just never gets any easier to see one of my babies go off to surgery.  Lily is especially hard because she's dealt with so much in such a short time and post op with Lily, from previous experience, is usually a nightmare.

After an hour or so, the orthopedic surgeon came out and told us he was able to put her leg back into the hip socket manually without opening her up (this was the good news).  He also made sure that it held because there is a risk, with her lower tone and looser ligaments, it could come right back out.  He then put her in a full body spica cast (see picture below) to hold her hip in place and she has to wear it for a full 8 weeks (the bad news).  The care for this cast and the limited things Lily can do while in it freaks me out a bit, but it has to be done.  MARCH 13th is the possible removal date and that sounds so incredibly far away.  For Lily, this means she will be using a reclining wheelchair, a bean bag, the floor or a bed.  No chairs, no carseats for 8 weeks.  No toilet, no bath (except sponge) and no normal clothing.  I still haven't determined what we will do about school or therapies.  We need to adjust to our new temporary normal and get a feel for what is doable and what isn't.  I'd ask that you continue to pray for Lily.  She's having a very hard time accepting and dealing with all of this and it breaks my heart to see her so distressed.  Singing to her and holding her hand are about the only things really calming her right now.  I'm hopeful once we get home in the next day or so, she will get back in her comfort zone, start to relax and we will see her beautiful smile again.  

She also needs prayers that her hip and leg stay right where they belong once her cast comes off because if they don't we will be forced to do the surgery we avoided today where the doctor has to cut her bone near the top below the ball, place it in the hip socket, use a few screws, a metal plate (that would need to be removed a year later), shorten her ligaments and do the spica cast all over again.  

Right before they took Lily to the OR

Lily in recovery-not happy :(

Barney & the iPad are better than morphine

And this too shall pass.