Church. Not Sure Where We Fit In...

I am Catholic.  I was raised Catholic by my mom and she took us to church every Sunday.  I also went to Sunday School for years (known as CCD back then, but now called Religious Ed). My dad was raised (quite pathetically) Methodist and as far as I know never went to a Methodist church except for maybe weddings and funerals.  He grudgingly attended Catholic events like baptisms, first communions, weddings and funerals, but preferred to stay as far away from church as possible.  Every Sunday, my mom would drag us out of bed, make sure we were dressed and fed before racing (literally) to church.  We were usually late and of course everyone noticed.  It's kinda hard to be inconspicuous with at first four and then eventually six kids entering a quiet church.  I rebelled a bit in high school and refused to go to church even with all the Catholic and mom guilt laid on me.  I just didn't care.  

My first year at IU (Indiana University), I felt an urge to go back to church and my dorm just happened to be within walking distance of the on campus Catholic Church. My first impression was thinking it was the most liberal Catholic Church I'd ever been in because the priests didn't generally dress like priests outside of church, were very laid back and often times comedians when giving their homilies. They actually allowed a Church Lady skit (Google Dana Carvey Church Chat if you don't know who the Church Lady is) one time with some students during Mass and we were rolling in the aisles laughing.  I loved them.  I also loved the music. Traditional music was taken and transformed into eclectic versions with acoustic guitars and soulful singers.  It was amazing.  I felt so connected to my faith again that I decided to get Confirmed. Something I had rejected in high school.  After I graduated from IU, I continued to attend church regularly until we had the boys.  

At first, it wasn't difficult.  Taking our oldest son, Riley, to church was very easy.  Then the twins arrived and I was lucky to get out of my pj's by noon that first year let alone make it to church.  Having 3 boys in 2 years was quite the adjustment and keeping all 3 quiet during Mass impossible.  I usually left the twins at home and took Riley to church by myself.  Reagan & Kaelan were showing signs of autism by the time they were 2 so you might imagine the behavior challenges we were dealing with at home often bled into our outings as well.  Usually, if we took them to church, there was always an incident (or two). One would get upset and let out a shriek; or the music would get too loud and both boys would panic and cover their ears.  They'd make bizarre clicks, moans, cries and humms while rocking their body's back and forth.  They'd bang their feet against the pews and usually Reagan escaped more than once with a gleeful grin on his face. Going up for communion was such a thrill (read sarcasm) too because Reagan frequently tried to make his First Holy Communion as a toddler when he lunged every. single. time. for the plate of communion the Extraordinary Ministers of Holy Communion was holding.  

It was pretty embarrassing because most people who didn't know the boys had autism thought they were just misbehaving brats.  I got so sick of the disapproving stares on top of the twin's behaviors that I just stopped taking them.  Then Riley started Catholic School in kindergarten. Most Sundays, I brought Riley to church and still left the twins at home.  I even became an Extraoridinary Minister of Holy Communion and got more involved with the church albeit minus the twins.  I think back and realize how rarely I brought the twins to Riley's school or to church.  It was just too hard to manage both of them and even when we did bring them we'd be exhausted by the time we left getting absolutely nothing out of church but resentment. 

Fast forward to our current situation.  I usually take the three teenagers to church leaving the younger three at home. Reagan and Kaelan have matured for the most part and can sit through Mass passably.  They even had their First Communion thanks to my mom being their private Religious Ed teacher (she teaches 2nd grade Religious Ed every year).  We still have embarrassing moments.  One is known to announce loudly things you'd prefer no one overhear.  One actually danced to someone's cell phone ringtone while we were sitting in the 2nd row pew right in front of the priest.  They also tend to give peace (shake hands for the non-Catholics) to each other quite forcefully and they always have to go to the restroom for an unusual amount of time causing me to sometimes send out a search party as to their whereabouts. There also may or may not have been a cartwheel executed on the alter during my youngest son's private baptism while we were at the baptismal font.  I can seriously count on one hand the times all eight of us have gone to church together.  And let me tell you we were quite the sight for all to behold and felt like we had a giant spotlight on us by the way everyone kept glancing at us (remember this post?).  Lily and Dasha are easily accepted because it is obvious they have Down syndrome.  Reagan, Kaelan and Leo at first glance appear "normal" until any behaviors flare up.  Even when we manage to get everyone dressed, fed and out the door, it is no easy feat especially with 4 children on the spectrum to arrive early, get settled and then expect them to sit for an hour quietly.  Lily and Leo cannot stay silent or still for any length of time and right now, it is a battle that can't be won.

So, I'm just trying to figure out how to fit church into our lives.  Any ideas?? The closest Catholic Church which my oldest prefers because his friends go there isn't set up to have families with multiple children with special needs. Sure, they have a cry room, but it is pretty small and usually filled with little kids and babies.  My teenagers really don't want to be in the cry room anyway, but I can't trust the twins to sit alone out in the main sanctuary.  How do we make it possible for ALL of us to attend church without losing our minds in the process? I do know some churches have special Religious Education programs called SPRED, but our church doesn't.  Those program also tend to work with older kids not little kids. There just seems to be a missing element for the younger than 10 set with special needs.  With all three of my boys (twins & Leo) on the autism spectrum, we were dealing with behaviors by the time they were 2 years old.  If I only had one child with special needs maybe it would be manageable, but not five kids.  I know we can't be the only family out there struggling with their church trying to attend and fit in with children who have special needs.  
    

Comments

Anonymous said…
Do they have a children's mass? At my church the 10:30 is specifically for children so it's louder and shorter and the homily relates to the kids. Could you talk to the priest about this issue?
Anonymous said…
We attend a Christian church with our 3 special needs kids. We are on our 4th church trying to find a good fit. I feel your pain.
Liz said…
As far as I can tell, no mass is specifically designed for children. I've thought about speaking to the priest, but I'm not sure how open he'd be to it. He seems a bit stiff around my kids the few times we've interacted with him.
Anonymous said…
Have you thought about asking around to see if there are any adults that would be willing to sit with your family to help monitor the situation? Perhaps have something in the bulletin; discreetly, of course.
hsb7x said…
It is tough. We go to a Baptist church and we end up dropping some of the kids off- while we drive around with the little one who can't sit through 2 services. (there is Sunday school and then preaching service) We have 6 kids, so we want the older ones to be able to be in church. During the preaching service, we stay in for the singing- and then take the little one out to the vestibule for the preaching.
The kids with special needs that is tough. The only way that you are going to get them used to being quiet is to take them. It is going to take training- and for that you need understanding from the others around you. If they get too loud then you'll have to leave- surely others will understand. Maybe you can find a church that is a little less "stuffy". I would definately talk to the priest. If he isn't receptive then you may want to find another church. There has to be one out there that will welcome you. Maybe one of you could stay home with the kids while the other person "church shops around." It is especially hard to go to all sorts of different churches with kids. I do feel for you- but you can do it if it is something that is important to you. People need to loosen up anyway- so what if a kid makes some noise. Jesus would welcome them and love them no matter what. Best wishes on finding a fit.
Heather
Liz said…
I agree with taking them so they get used to going. That is how we got the twins "good" at going to church, but they were older and verbal. Lily and Leo are the two who make the most noise and require the most care. They are LOUD all of the time. Shushing them doesn't do anything. We've even brought Lily in a stroller and that helped for about 15 mins. Leo hates to be contained and will scream and writhe the entire time. All of their soothing/distracting toys make noise except Lily's washcloths and Leo's pacifier. The selfish side of me wants to get something out of church too and that is impossible with all of my kids fidgeting and fussing at church so for now Lily & Leo stay home or we take over the cry room (there are only about 15 chairs in the room and 9 of us).
Cindy said…
There are so many families that don't get to attend church because there isn't a place for their kids. The Lord put it on my heart a few years ago to start Special Connections, a class at our church for kids with special needs. Unfortunately we live in Seattle. We're also Pentecostal. I'll be praying you find a church that meets your needs!
Liz said…
Cindy, that sounds like a wonderful idea. What exactly do you do during the class? Is it during church or after? Love to hear all about it! You can email me or just leave a comment here. sissyyssis@aol.com :)
Jen said…
I've always belonged to a church that had a Catholic School so they were always super kid friendly and understanding.

I might think about contacting the diocese and seeing if they can put you in touch with other parents who have the same issues. Or their might be a parish better suited to your needs that they could suggest.
Heather said…
Have you looked to see if there's a Catholic Specific Special Needs, Autism, or DS Facebook group? I'm on one that is for LDS folks with DS kids in their families. People will get on there and ask questions just like yours all the time. I've found lots of helpful advice on lots of things: Keeping Anya quiet during services, working with her Sunday School teacher on behavior issues, finding ways to let her get involved and do things the other kids do, etc. Maybe do some searches on Facebook. If there isn't anything of the sort, you can start one! You'd be amazed at how fast it grows. Ours was started one day and within a week or so it had probably 100 members.

Is there a possibility that your leaders could ask for volunteers to be "aides" for your children? I'm not sure how they do things in the Catholic church. In ours, we don't have a paid clergy, so the Bishop gives "callings" or jobs to people. Some people have callings just to be helpers for special needs kiddos.

Best wishes to you. Hope you can come up with something that works. The Lord will bless you for your efforts, I'm sure!!
Anonymous said…
You might want to check out this website: http://www.joniandfriends.org/area-ministries/. I don't know where you live, but Joni and Friends has regional offices that might be able to direct you to a church with a strong disability ministry in your area. If that is not successful, you may want to talk to the youth ministers to see if there are peers the age of your older children who might want to be "service buddies."
Suzanne said…
I know you posted this a while ago, but I just read it and it certainly struck a chord with me. I would really like to attend church as a family, with Janey it's impossible. She would not last 5 seconds before making the service unbearable for everyone there---screaming, tantruming, hysterical. We've tried several churches, and I wind out just taking her outside. Sunday school is not equipped at any church I've been to to handle kids with severe special needs. We are mainline Protestant---I have found here in the Boston area that both the Catholic church and Jewish temples do have programs with kids with autism, but not any Protestant churches I've been able to find. There is actually a special mass each week at one Catholic church, I've been told, just for families with autistic kids. I'm not quite ready to convert, but I think if churches want to grow, they might want to think about the many families like ours!
Anonymous said…
Jesus said "let the little children come to me". I always imagined it to be filled with rough and tumble children laughing and playing, some even doing a cartwheel ;) as our Lord sat around them smiling.

Children, all children should be welcome, inclusive of race and disability.

I don't know what I will do in your position, but I know if the church is stuffy enough that only 'perfect' children are acceptable and not so 'perfect' ones are to be hidden away, I would find a church that accepts them.

God bless
Debbie said…
There are always teenagers that need service hours. This seems like it might be a good one for them. They could sit with you and help with the younger kids. Younger kids always seem to like teenagers. The parish office should be able to help with this. Just started reading your blog.